Family and parent support
Objectives
- To support family relations and functioning
- To support parents’ well-being
- To promote family support initiatives
Inspirational questions
Do you
- Provide ongoing self-management and motivational support to your patients and their families?
- Help parents with training and counselling?
Topics in focus
- Family-centred education and support
- Parent-adolescent teamwork / collaboration
- Peer support initiatives for parents and families
Expert content reviewer
Prof. Dr. Karin Lange Medizinische Psychologie
Medizinische Hochschule Hannover
Germany
- Parents and families of children and young people with diabetes
Content
- Background information – international recommendations and guidelines; DAWN Youth publications, scientific posters/abstracts, articles, powerpoint presentations and video material
- Practical tools and programs – including structured descriptions of national DAWN Youth initiatives
- Ongoing research projects
Family-centred education and support
The burden of having diabetes. An overview of children’s needs and worries | Amillategui B, Marín, MC, García-Bouza S, Bodas P, Arana R. Abstract presented at the ISPAD Meeting 2007 in Berlin: The burden of having diabetes. An overview of children’s needs and worries. | ENG |
Children with diabetes mellitus and family functioning: Translating research into practice. | Anderson BJ. Children with diabetes mellitus and family functioning: Translating research into practice. Journal of Pediatric Endocrinology & Metabolism 2001;14 (suppl. 1):645-652. Curriculum or program outline included | |
‘The psychosocial needs of parents’ | Anderson BJ. Presentation at the DAWN Youth Summit in Berlin 2007: ‘The psychosocial needs of parents’ | ENG |
‘Training in family-centered pediatric diabetes care’ | Anderson BJ. Presentation at the PSAD congress in Sardinia 2008: ‘Training in family-centered pediatric diabetes care’ – Guidelines included | ENG |
Diabetes in the school. Perceptions of children and adolescents with type 1 diabetes | Bodas P, Marín MC, Amillategui B, Arana R. Diabetes en la escuela. Percepciones de los niños y adolescentes con diabetes mellitus tipo 1 (Diabetes in the school. Perceptions of children and adolescents with type 1 diabetes). Avances en Diabetología 2008;24(1):441-446. – NB Article in Spanish | |
Serious illness in childhood: The different threats of cancer and diabetes from a parent perspective | Boman KK, Viksten J, Kogner P, Samuelsson U. Serious illness in childhood: The different threats of cancer and diabetes from a parent perspective. The Journal of Pediatrics 2004;145:373-379. | |
New perspectives, new solutions – improving care in Brazil | Calliari LE, Malerbi FEK. New perspectives, new solutions – improving care in Brazil. Diabetes Voice 2008;53(Special issue):33-35 | ENG |
Family mediators and moderators of treatment outcomes among youth with poorly controlled type 1 diabetes: Results from a randomised controlled trial | Ellis DA, Yopp J, Templin T, Naar-King S, Frey MA, Cunningham PB, Idalski A, Niec LN. Family mediators and moderators of treatment outcomes among youth with poorly controlled type 1 diabetes: Results from a randomised controlled trial. Journal of Pediatric Psychology 2007;32(2):194-205. | |
Empowering children with diabetes and their parents | Hoey HMCV. Empowering children with diabetes and their parents. Diabetes Voice 2004; 49(special issue):25-27. | |
Childhood Diabetes – a family burden | Lange K. Presentation in Copenhagen 2005: ‘Childhood Diabetes – a family burden’ | ENG |
ddressing shortcomings in diabetes care and school support in Spain | Marin MC. Addressing shortcomings in diabetes care and school support in Spain. Diabetes Voice 2008;53(Special issue):25-26 | ENG |
Improving the quality of life of young people with diabetes in Egypt | Sioufi L, Shaltout A. Improving the quality of life of young people with diabetes in Egypt. Diabetes Voice 2005;50(2):35-39. | |
Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes | Wagner VM, Müller-Godeffroy E, von Sengbusch S, Häger S, Thyen U. Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes. European Journal of Pediatrics 2005;164:491-496. |
Parent-adolescent teamwork / collaboration
Facilitating Family Teamwork | Anderson BJ. Presentation at the DAWN Youth advisory board meeting in Budapest 2008: ‘Facilitating Family Teamwork’ – Curriculum included | ENG |
An office-based intervention to maintain parent-adolescent teamwork in diabetes management. Impact on parent involvement, family conflict and subsequent glycemic control | Anderson BJ, Brackett J, Ho J, Laffel LMB. An office-based intervention to maintain parent-adolescent teamwork in diabetes management. Impact on parent involvement, family conflict and subsequent glycemic control. Diabetes Care 1999; 22:713-721. | |
Diabetes complications in youth: qualitative analysis of parents' perspectives of family learning and knowledge | Buckloh LM, Lochrie AS, Antal H, Milkes A, Canas JA, Hutchinson S, Wysocki T. Diabetes complications in youth: qualitative analysis of parents' perspectives of family learning and knowledge. Diabetes Care 2008;31(8):1516-1520. | |
How do parents perceive their adolescent's diabetes: a qualitative study | Carroll AE, Marrero DG. How do parents perceive their adolescent's diabetes: a qualitative study. Diabetic Medicine 2006;23(11):1222-1224. | |
Self-report and parent-report of physical and psychosocial well-being in Dutch adolescents with type 1 diabetes in relation to glycemic control | de Wit M, de Waal HAD, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, Snoek FJ. Self-report and parent-report of physical and psychosocial well-being in Dutch adolescents with type 1 diabetes in relation to glycemic control. Health and Quality of Life Outcomes 2007;5:10. | |
ealth-related quality of life and metabolic control in adolescents with diabetes: The role of parental care, control and involvement | Graue M, Wentzel-Larsen T, Hanestad BR, Søvik O. Health-related quality of life and metabolic control in adolescents with diabetes: The role of parental care, control and involvement. Journal of Pediatric Nursing 2005;20(5):373-382. | |
Towards a new paradigm for paediatric diabetes care | Hoey H. Presentation at the ISPAD Symposium 2008: ‘Towards a new paradigm for paediatric diabetes care’ | ENG |
Support network of adolescents with chronic disease: adolescents' perspective | Kyngäs H. Support network of adolescents with chronic disease: adolescents' perspective. Nursing & Health Sciences 2004;6(4):287-293. | |
Impact of ambulatory family-focused teamwork intervention on glycemic control in youth with type 1 diabetes | Laffel LMB, Vangsness L, Connell A, Goebel-Fabbri A, Butler D, Anderson BJ. Impact of ambulatory family-focused teamwork intervention on glycemic control in youth with type 1 diabetes. The Journal of Pediatrics 2003;142:409-416. | |
Adolescents’ perceptions of parental roles and involvement in diabetes management | Leonard BJ, Garwick A, Adwan JZ. Adolescents’ perceptions of parental roles and involvement in diabetes management. Journal of Pediatric Nursing 2005;20(6):405-414. | |
he role of autonomy and pubertal status in understanding age differences in maternal involvement in diabetes responsibility across adolescence | Palmer DL, Berg CA, Wiebe DJ, Beveridge RM, Korbel CD, Upchurch R, Swinyard MT, Lindsay R, Donaldson DL. The role of autonomy and pubertal status in understanding age differences in maternal involvement in diabetes responsibility across adolescence. Journal of Pediatric Psychology 2004;29(1):35-46. | |
Peer and family support in children and adolescents with type 1 diabetes | Pendley JS, Kasmen LJ, Miller DL, Donze J, Swenson C, Reeves G. Peer and family support in children and adolescents with type 1 diabetes. Journal of Pediatric Psychology 2002;27(5):429-438. | |
Changing patterns of selv-management in youth with type 1 diabetes | Schilling LS, Knafl KA, Grey M. Changing patterns of selv-management in youth with type 1 diabetes. Journal of Pediatric Nursing 2006;21(6):412-424. | |
Adolescent views of diabetes-related parent conflict and support: a focus group analysis | Weinger K, O'Donnell KA, Ritholz MD. Adolescent views of diabetes-related parent conflict and support: a focus group analysis. Journal of Adolescent Health 2001;29(5): 330-336. | |
Children’s appraisals of maternal involvement in coping with diabetes: enhancing our understanding of adherence, metabolic control and quality of life across adolescence | Wiebe DJ, Berg CA, Korbel C, Palmer DL, Beveridge RM, Upchurch R, Lindsay R, Swinyard MT, Donaldson DL. Children’s appraisals of maternal involvement in coping with diabetes: enhancing our understanding of adherence, metabolic control and quality of life across adolescence. Journal of Pediatric Psy | |
Social support and diabetes management in childhood and adolescence: Influence of Parents and friends | Wysocki T, Greco P. Social support and diabetes management in childhood and adolescence: Influence of Parents and friends. Current Diabetes Reports 2006;6:117-122. |
Peer support initiatives for parents and families
Family camps: an overview of benefits and issues of camps and programs for families | Agate ST, Covey CD. Family camps: an overview of benefits and issues of camps and programs for families. Child and adolescent psychiatric clinics of North America 2007; 16(4):921-937,ix. | |
Addressing shortcomings in diabetes care and school support in Spain | Marin MC. Addressing shortcomings in diabetes care and school support in Spain. Diabetes Voice 2008;53(Special issue):25-26 | ENG |
IDF and ISPAD recommendations /guidelines
Psychological care of children and adolescents with diabetes | Delamater A M. ISPAD Clinical Practice Consensus Guidelines 2006-2007. Psychological care of children and adolescents with diabetes. Pediatric Diabetes 2007;8:340-348. | ENG |
DAWN Youth publications and video materiel
Booklet ‘Changing diabetes through DAWN Youth’ | ENG | |
Video - ‘Diabetes in the Family’ (Evelin, Mexico) | ENG | |
Young people’s needs and priorities for improved support and education: a call for action | Nielsen AØ, Lewis D, McEnery C, Pedersen J, Salkow M, Skovlund S, Greene A. Young people’s needs and priorities for improved support and education: a call for action. Diabetes Voice 2007;52(special issue, November):41-42. |


