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Family and parent support

Objectives

  • To support family relations and functioning
  • To support parents’ well-being
  • To promote family support initiatives

Inspirational questions

Do you

  • Provide ongoing self-management and motivational support to your patients and their families?
  • Help parents with training and counselling?

Topics in focus

  • Family-centred education and support
  • Parent-adolescent teamwork / collaboration
  • Peer support initiatives for parents and families

Expert content reviewer

Prof. Dr. Karin Lange

Medizinische Psychologie
Medizinische Hochschule Hannover
Germany

  • Parents and families of children and young people with diabetes

Content

  1. Background information – international recommendations and guidelines; DAWN Youth publications, scientific posters/abstracts, articles, powerpoint presentations and video material
  2. Practical tools and programs – including structured descriptions of national DAWN Youth initiatives
  3. Ongoing research projects

Search for your topic of interest:

Family-centred education and support

The burden of having diabetes. An overview of children’s needs and worries

Amillategui B, Marín, MC, García-Bouza S, Bodas P, Arana R. Abstract presented at the ISPAD Meeting 2007 in Berlin: The burden of having diabetes. An overview of children’s needs and worries.


ENG

Children with diabetes mellitus and family functioning: Translating research into practice.

Anderson BJ. Children with diabetes mellitus and family functioning: Translating research into practice. Journal of Pediatric Endocrinology & Metabolism 2001;14 (suppl. 1):645-652. Curriculum or program outline included

‘The psychosocial needs of parents’

Anderson BJ. Presentation at the DAWN Youth Summit in Berlin 2007: ‘The psychosocial needs of parents’


ENG

‘Training in family-centered pediatric diabetes care’

Anderson BJ. Presentation at the PSAD congress in Sardinia 2008: ‘Training in family-centered pediatric diabetes care’ – Guidelines included


ENG

Diabetes in the school. Perceptions of children and adolescents with type 1 diabetes

Bodas P, Marín MC, Amillategui B, Arana R. Diabetes en la escuela. Percepciones de los niños y adolescentes con diabetes mellitus tipo 1 (Diabetes in the school. Perceptions of children and adolescents with type 1 diabetes). Avances en Diabetología 2008;24(1):441-446. – NB Article in Spanish

Serious illness in childhood: The different threats of cancer and diabetes from a parent perspective

Boman KK, Viksten J, Kogner P, Samuelsson U. Serious illness in childhood: The different threats of cancer and diabetes from a parent perspective. The Journal of Pediatrics 2004;145:373-379.

New perspectives, new solutions – improving care in Brazil

Calliari LE, Malerbi FEK. New perspectives, new solutions – improving care in Brazil. Diabetes Voice 2008;53(Special issue):33-35


ENG

Family mediators and moderators of treatment outcomes among youth with poorly controlled type 1 diabetes: Results from a randomised controlled trial

Ellis DA, Yopp J, Templin T, Naar-King S, Frey MA, Cunningham PB, Idalski A, Niec LN. Family mediators and moderators of treatment outcomes among youth with poorly controlled type 1 diabetes: Results from a randomised controlled trial. Journal of Pediatric Psychology 2007;32(2):194-205.

Empowering children with diabetes and their parents

Hoey HMCV. Empowering children with diabetes and their parents. Diabetes Voice 2004; 49(special issue):25-27.

Childhood Diabetes – a family burden

Lange K. Presentation in Copenhagen 2005: ‘Childhood Diabetes – a family burden’


ENG

ddressing shortcomings in diabetes care and school support in Spain

Marin MC. Addressing shortcomings in diabetes care and school support in Spain. Diabetes Voice 2008;53(Special issue):25-26


ENG

Improving the quality of life of young people with diabetes in Egypt

Sioufi L, Shaltout A. Improving the quality of life of young people with diabetes in Egypt. Diabetes Voice 2005;50(2):35-39.

Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes

Wagner VM, Müller-Godeffroy E, von Sengbusch S, Häger S, Thyen U. Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes. European Journal of Pediatrics 2005;164:491-496.

Parent-adolescent teamwork / collaboration

Facilitating Family Teamwork

Anderson BJ. Presentation at the DAWN Youth advisory board meeting in Budapest 2008: ‘Facilitating Family Teamwork’ – Curriculum included


ENG

An office-based intervention to maintain parent-adolescent teamwork in diabetes management. Impact on parent involvement, family conflict and subsequent glycemic control

Anderson BJ, Brackett J, Ho J, Laffel LMB. An office-based intervention to maintain parent-adolescent teamwork in diabetes management. Impact on parent involvement, family conflict and subsequent glycemic control. Diabetes Care 1999; 22:713-721.

Diabetes complications in youth: qualitative analysis of parents' perspectives of family learning and knowledge

Buckloh LM, Lochrie AS, Antal H, Milkes A, Canas JA, Hutchinson S, Wysocki T. Diabetes complications in youth: qualitative analysis of parents' perspectives of family learning and knowledge. Diabetes Care 2008;31(8):1516-1520.

How do parents perceive their adolescent's diabetes: a qualitative study

Carroll AE, Marrero DG. How do parents perceive their adolescent's diabetes: a qualitative study. Diabetic Medicine 2006;23(11):1222-1224.

Self-report and parent-report of physical and psychosocial well-being in Dutch adolescents with type 1 diabetes in relation to glycemic control

de Wit M, de Waal HAD, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, Snoek FJ. Self-report and parent-report of physical and psychosocial well-being in Dutch adolescents with type 1 diabetes in relation to glycemic control. Health and Quality of Life Outcomes 2007;5:10.

ealth-related quality of life and metabolic control in adolescents with diabetes: The role of parental care, control and involvement

Graue M, Wentzel-Larsen T, Hanestad BR, Søvik O. Health-related quality of life and metabolic control in adolescents with diabetes: The role of parental care, control and involvement. Journal of Pediatric Nursing 2005;20(5):373-382.

Towards a new paradigm for paediatric diabetes care

Hoey H. Presentation at the ISPAD Symposium 2008: ‘Towards a new paradigm for paediatric diabetes care’


ENG

Support network of adolescents with chronic disease: adolescents' perspective

Kyngäs H. Support network of adolescents with chronic disease: adolescents' perspective. Nursing & Health Sciences 2004;6(4):287-293.

Impact of ambulatory family-focused teamwork intervention on glycemic control in youth with type 1 diabetes

Laffel LMB, Vangsness L, Connell A, Goebel-Fabbri A, Butler D, Anderson BJ. Impact of ambulatory family-focused teamwork intervention on glycemic control in youth with type 1 diabetes. The Journal of Pediatrics 2003;142:409-416.

Adolescents’ perceptions of parental roles and involvement in diabetes management

Leonard BJ, Garwick A, Adwan JZ. Adolescents’ perceptions of parental roles and involvement in diabetes management. Journal of Pediatric Nursing 2005;20(6):405-414.

he role of autonomy and pubertal status in understanding age differences in maternal involvement in diabetes responsibility across adolescence

Palmer DL, Berg CA, Wiebe DJ, Beveridge RM, Korbel CD, Upchurch R, Swinyard MT, Lindsay R, Donaldson DL. The role of autonomy and pubertal status in understanding age differences in maternal involvement in diabetes responsibility across adolescence. Journal of Pediatric Psychology 2004;29(1):35-46.

Peer and family support in children and adolescents with type 1 diabetes

Pendley JS, Kasmen LJ, Miller DL, Donze J, Swenson C, Reeves G. Peer and family support in children and adolescents with type 1 diabetes. Journal of Pediatric Psychology 2002;27(5):429-438.

Changing patterns of selv-management in youth with type 1 diabetes

Schilling LS, Knafl KA, Grey M. Changing patterns of selv-management in youth with type 1 diabetes. Journal of Pediatric Nursing 2006;21(6):412-424.

Adolescent views of diabetes-related parent conflict and support: a focus group analysis

Weinger K, O'Donnell KA, Ritholz MD. Adolescent views of diabetes-related parent conflict and support: a focus group analysis. Journal of Adolescent Health 2001;29(5): 330-336.

Children’s appraisals of maternal involvement in coping with diabetes: enhancing our understanding of adherence, metabolic control and quality of life across adolescence

Wiebe DJ, Berg CA, Korbel C, Palmer DL, Beveridge RM, Upchurch R, Lindsay R, Swinyard MT, Donaldson DL. Children’s appraisals of maternal involvement in coping with diabetes: enhancing our understanding of adherence, metabolic control and quality of life across adolescence. Journal of Pediatric Psy

Social support and diabetes management in childhood and adolescence: Influence of Parents and friends

Wysocki T, Greco P. Social support and diabetes management in childhood and adolescence: Influence of Parents and friends. Current Diabetes Reports 2006;6:117-122.

Peer support initiatives for parents and families

Family camps: an overview of benefits and issues of camps and programs for families

Agate ST, Covey CD. Family camps: an overview of benefits and issues of camps and programs for families. Child and adolescent psychiatric clinics of North America 2007; 16(4):921-937,ix.

Addressing shortcomings in diabetes care and school support in Spain

Marin MC. Addressing shortcomings in diabetes care and school support in Spain. Diabetes Voice 2008;53(Special issue):25-26


ENG

IDF and ISPAD recommendations /guidelines

Psychological care of children and adolescents with diabetes

Delamater A M. ISPAD Clinical Practice Consensus Guidelines 2006-2007. Psychological care of children and adolescents with diabetes. Pediatric Diabetes 2007;8:340-348.


ENG

DAWN Youth publications and video materiel

Booklet ‘Changing diabetes through DAWN Youth’


ENG

Video - ‘Diabetes in the Family’ (Evelin, Mexico)


ENG

Young people’s needs and priorities for improved support and education: a call for action

Nielsen AØ, Lewis D, McEnery C, Pedersen J, Salkow M, Skovlund S, Greene A. Young people’s needs and priorities for improved support and education: a call for action. Diabetes Voice 2007;52(special issue, November):41-42.